Zoë is still on oxygen. We went last week and she weighed 10 lb 7 oz. She is gaining weight but not as fast as the pulmologist would like. Their theory is that if gains her weight now, in a few years she would be the small kid. If she doesn't grow now, she will be the small kid and have more trouble with her lungs. So the oxygen is to help her not work as hard. Because if she has to work hard to breathe, she will lose calories and we want her to retain the calories that she takes in. She was only gaining a half ounce per day and she needed to be at one ounce per day. The result of this is that she is now on 27 calorie formula. Regular formula is 20 calories. The results of the apnea monitor is that it only went off 3 times since she came home from the hospital in July. This didn't seem to concern them. They also did take into account that she had the swine flu and were told that it can take a long time to recover from it and a possible reason for the slow weight gain. I think this is another reason they are keeping her on the oxygen.
Today we saw our pediatrician. She however is not concerned about her weight gain. Today Zoë weighed 10 lb 14 oz. So in the last 7 days she has been gaining one once her day. She is very pleased with her weight gain. This is the frustrating part because you get two different doctors telling you two different things. On top of that we have been struggling with finding a bottle/nipple that Zoë likes. Her eating habits had changed and we thought it was the nipple. I think we found the right one. Now our pediatrician looks at the overall picture. As we discussed our concerns about the two different messages we are getting and her eating habits, we have decided to pay attention to the pediatrician. She made a lot of sense when we discussed everything. I think it is because we did discuss Zoë's overall progress, not just weight. She also got her 6 months shots today. Poor baby cried, she even had tears :( We did help her by giving her Tylenol before the shots. This helped so much today. She wasn't as fussy as she could have been. So it seems that both doctors are looking at different charts and we just need to be patient and know that all of this is to make her stronger physically. We already know she is a strong person inside.
We also saw her surgeon this week. Good news is that everything is healing nicely. We have gone from monthly visits to going every 2-3 months. She also is pleased with her progress.
Other good news is that each doctor was pleased with development. She is doing a lot of things that they are expecting. Here are some of the new things she does.
- She turned to her tummy. Not once but several times.
- Is liking tummy time more, but still gets mad
- Sits up by herself in her Bumbo chair
- Is sleeping through the night (every night), except for the night it rained (she woke up and wanted to play)
- She intentionally grabs her doll and hugs her. It also looks like she wrestles with her. Her name is Dolly
- Notices her toys when they are in her reach and tries to grab them
- She notices her hands when she moves them in front of her
- She has the biggest smile when she sees Mommy and Daddy
- Rubs her eyes when she is tired
- She still talks a lot, doesn't complain as much as she used to. She likes to just talk.
- Tia Lissa noticed her laughing in her sleep two days ago
- Likes to dance with Daddy
Daddy has also started his marathon training. He joined the Phoenix Children's' Hospital Miracles in Motion marathon training team. He gets help training for the PF Chang's Marathon and he will help raise money for PCH. We will be asking for your help on this. He needs to get $1500 in donations by November 15th. There is a web link where you can donate. Once he gets it, we will post it on this blog. They have given us so much, that we want to give back to them. His first meeting and run is tomorrow morning. Good luck Marathon training Daddy!
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