Thursday, September 24, 2009

Zoë is off her oxygen!!!!!

Yes it has happened. Zoë no longer needs oxygen!!!! We are so excited!!!!

We took off the cannula and she looks like a different person. She seems so much more comfortable, but she does look for the tubing, since she used to play with it. She is still on the apnea monitor, but this is OK because we can sleep in peace, they are actually going to have to pry it away from me. I need to learn to let it go in the next month or so :(

So a lot has happened in the last month. Sorry for not updating sooner. We hadnt realized that it had been so long. We had break from DRs visits so it was pretty quite. Last we talked, she was having problems with her feeding, we finally found the right bottle/nipple combo that she liked. But we realized that she was eating less because of the 27 calorie diet. Then at the beginning of Sep, she got constipated :( This was really hard to watch and we got worried because of her surgery repair. We didnt want anything to rip. So we decided to change her back to 24 calories to give her more fluid. Daddy also had a heated discussion last week with the nutritionist. We didnt tell her we switched her calorie intake but she was insistant we stay on the 27 calories and add oatmeal. We said we would give it a try. We then saw her surgeon and this helped us because everything looked good and she was just constipated. She needs more fluid. The surgeon said to give the 27 a try and if it didnt work then go to 24 with the oatmeal. She eat more oz on the 24 then the 27. Also she did not gain the weight she needed. This was according to the pulmonologist. We then come to find out that they are grading her on a 7 month old, not a 29 week preemie. We thought at this point that they would keep her on oxygen, but that didnt happen. Friday night we took her oxygen saturation test and today we got the results. this has been the best news, since they told us she was coming home. Well we did fess up to our Zoë on a 29 week preemie chart and she is in teh 25%, this is good for her. So she gave the ok to stay on the 24 cal diet and agrees with us the Zoë is not your normal preemie because of her surgery. We love our pediatrician, she always makes us feel much better. She was going to talk to the nutritionist for us and fax over the growth chart she uses, hee hee. She is so much on our side.

Zoë has also started to do many new things. She holds up her head on her own. She found her feet; she grabs them and plays with them. She also knows who her Mama and Daddy are. She gets seperation anxiety when we are in the room and are not with her. She rolls over much more and has started to like tummy time much more. She learned to lift her head during tummy time. She loves her toys that we hang when she lies down and reached for them. She laughs a lot, it is the cutest laugh. She also learned to scream. She loves to cuddle with Mommy, she falls asleep on my shoulder now.

The biggest news is that she was teething all this time. Both her bottom two teeth have broken through the gums. The first one broke through 1 week ago and the 2nd one on Monday night. She loves to bite down and does not let me check her gums anymore.

She is already 7 months. She has grown up so fast. She has finally been home more then she was in the hospital, this is such a relief. Her 1yr old BDay part is in less then 5 months. We need to start planning. But first we need to find her Halloween costume and get ready for her to attend her 1st ASU home game. We have not been because it has been too hot for her. Maybe in the next 2 home games we will go. Thanks for all the prayers and messages from everyone, we appreciate it :) It is such a good feeling to know how many people love her. She is so easy to love :)

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